I've called so many doctors in the past few hours, I'm not even sure where to start. MommyMD (me) isn't ruling out Celiac disease. He may not have Celiac disease, but he most certainly has a terrible reaction to wheat...just found that out the hard way. From what I've read, in order to get an accurate Celiac test, the patient needs to be on a gluten diet for 6 months to see indications in the GI lining. I don't ever feed him wheat, so I'm sure that's why the GI said things look good. Good times.
Plan I've made today (because really you all care, right?!):
- ECI coming to our house for an evaluation. Early Care Intervention-- this is amazing. Government funded assistance for developmental delays. I will have a therapist come to our home and help me work with Carson on his motor skills, vocabulary, etc. What a God send! Can everyone just come to the house like they are?
- Taking Carson to the Gonino Center for healing on March 22 for a consultation. The center uses a combination of testing, natural remedies and medications. My hands are in so many pots right now, I just think it might help to find a doctor that will look at everything and tell me we are on the right path or we need to do additional testing. I am really excited about Dr. Gonino. He has asked me to mail him all of our test results so he can review them before we come. It's 1.5 hours away so I REALLY hope this is worth the drive. But at this point I will stand on my head for 7 days straight if it will help.
- Still going to Immunologist at 10:30 tomorrow. Might as well hear what he has to say :)
WE WILL FIGURE THIS OUT. I may go insane in the process, but we WILL! Any thoughts or suggestions are welcome.
Love,
An exhausted but hopeful mommy
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9 years ago
4 comments:
No suggestions but I am praying for all of you, especially you and Carson. I have to say that I am super impressed by all the research you are doing. My mom just always went with what our 1 doctor would say and leave it at that. God really blessed Alex and Carson by entrusting them to you, you're a wonderful mother. Stay strong, He won't give you more than you can handle.
I don't have any suggestions either, but we did Early Intervention for Brooklyn with her speech and it was awesome! They do it a little different in AR, but same concept of free therapy! She did awesome with it and had a blast with her therapist. It really built her confidence.
Praying for you guys! I know you are worn out. Hang in there!
wow, you have been a busy bee. but all great and helpful things. wow.
i know a couple of people with celiac and i am sorta with ya there...esp with his harsh reaction to wheat. hmmm....will continue to pray for some answers.
hang in there sweetie - i know this has been so consuming. remember...HE won't give you more than you can handle ok. cling to that promise.
mwaaaa!
Sal
funny, when i told my mom about all that is going on with carson, celiac was the first thing she said he should get tested for. apparently it is commonly mis-diagnosed in kids and can be tough to nail down because it masks as other allergies and can look different in different kids. i had no idea though that it would take 6 months before you could get something concrete! ahhh, that is so long to wait! i'm always praying and loving on you guys from over here.
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