Tuesday, April 13, 2010

ECI - Carson update

Today, Carson was evaluated by ECI (Early Childhood Intervention). ECI is a state agency focused on helping children (birth to age 3) that are experiencing delays or developmental issues. I wasn't sure if Carson would qualify for help, but I thought it was worth checking out.

ECI is amazing. I just wish I had known to call them ages ago. We had a therapist come to our home today to learn more about Carson and to assess him to see how he is doing.

I'll just get to it...she said he has a large speech delay :( She said he is at a 10-12 month old level...and he is 19 months old. Needless to say, that was very hard for me to hear. I went and found Alex's newsletter and she was using around 50 words at this age. He's using less than 10 words. He is still not clapping or pointing, and behind in social interaction, etc. The best way I can describe it is that I feel like he is developing in slow motion. It's hard to hear about all of the kids his age and what they are doing right now...he's just not there.

I am still holding on to the idea that Carson has been dealing with serious stomach issues and has high levels of toxins in his blood that are creating a "less than ideal" environment for his growth and development. Just in the past 10 weeks, we've hit the ground running with a new diet and supplements. I am hoping and PRAYING that it will just take some time for his body to clear up and catch up.

The Gonino clinic called today and they have Carson's blood work results. I will take him next Tuesday to hear the results and hopefully get some direction.

Just trying to stay encouraged. Sigh. Some days are much easier than others. Today...it's been a harder day. Hearing your child has a "massive speech delay" is crushing. I am thankful we will be getting some help though. Thank goodness for capable professionals that are dedicated to helping him (and me). It's felt a bit lonely on this journey at times...so I am thrilled to take any help offered.

Keep our little man in your prayers.

"As you go through this day, trust Me to provide strength that you need moment by moment. Don't waste energy wondering whether you are adequate for today's journey. My Spirit within you is more than sufficient to handle whatever this day may bring."

4 comments:

Holly, Ben, and Reid said...

Love you, sweet friend! Sending many prayers your way...

Nicole Fields said...

Love you girl! God has big plans for Carson. He is such an amazing guy! I will be praying hard for you guys. Please know I am here for you...please let me know what I can do. I understand how you feel alone....totally get that! Love you so much!

Sally said...

oh wow Mel!!! Thanks for this update - i have been wondering how he has been doing...and you too.
Hang in there...the ball is rolling on getting him 100% the best he can be! I know without a doubt he'll catch up fast. AND...boys talk a lot less AND later than girls...don't forget to take that into account too ok.
Love you!!! So excited to catch up this weekend a bit in Moody - face to face!!!! :)

Jan said...

Hey Mel and Nathan,
Just read the update on the speech delay and am glad you will be starting therapy (the earlier the better). If I can help in any way, let me know. Im sure your SLP will have tons of info and materials to work with. One important link that I have found that really brings on speech is music...google, speech therapy with music. Carson will love it, not to mention it is so much fun for everybody. I've got some programs in mind and will get you the names when I get to the office tomorrow. Hang in there, he has had a lot to deal with, and he will catch up! Love you, "Aunt" Jan